Welcome.
If you’re here, there’s a good chance you love a child with a physical disability or you’re learning how to support one.

I’m a parent navigating life with a child who has phocomelia, which affects all four of his extremities. Like many families, we didn’t come into this journey with a roadmap, even though we wished there was one! We’ve learned through experience, trial and error, hard days, small victories, medical appointments, adaptive solutions, and a whole lot of love to navigate this would with a little one with a physical disability.

This blog exists to advocate, answer questions, and to support families raising children with physical disabilities. It’s a place to share what has helped us, what we’re still figuring out, and what we wish we had known earlier. Some posts will be informational, some reflective, and some simply honest of our everyday life!

My hope is that this space helps families feel:

• Less alone
• More informed
• More confident advocating for their child
• And reminded that their child’s life is full of value, possibility, hope
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You don’t need to have all the answers to be a good parent or caregiver. We’re learning as we go — and if something we’ve learned can help another family even a little, then this space is doing what it’s meant to do.

Thank you for being here.